I don’t know how to navigate this time in my life. I’m scheduled for Open Heart Surgery in a few weeks which is a major surgery due to a genetic defect that I’ve had my whole life. I never knew I had this problem even though the signs were all there. No doctor ever figured it out and what I had always thought was normal for me – fainting, low blood pressure and a heart murmur – I’ve suddenly found out isn’t normal. Who knew? Family always thought I was over-dramatic because I was always tired. They thought I was lazy. I have a diagnosis of Chronic Fatigue due to cancer, radiation, multiple surgeries and chemotherapy, but that made no difference to them.
I’m exhausted, even more exhausted than usual now that I have this worrisome anticipation of upcoming surgery. Emotional, physical, mental and on a soul level, I’m distraught. I’ve always been a planner so this has totally changed me because there are so many ‘what if’s’ involved in this procedure that I can’t wrap my head around it.
I swing from not wanting to stay here on this plane to wanting to fight my way to health. There’s no middle ground for me. It’s as if I’m on a roller coaster mentally. I’m not sleeping well as I guess my subconscious is trying to work out everything while I’m asleep. I want to push away all of the kind-hearted friendships I have and at the same time, I want someone to take care of me, baby me, hold me and help me. It’s not easy being in this situation. Not easy for them, nor me. I don’t think my kids can grasp the idea either and they’ve been through a lot with me.
Maintaining a steady course feels impossible. I’ve been reading, researching and that has caused a lot of fear to massively inch its way into my psyche. Sure, I realize people have this surgery everyday and I’m not an abnormality as so many people tell me stories about people they know who have had the surgery and ‘been fine’ afterwards. I don’t care to hear any more stories. I know that sounds selfish, but I can’t handle it.
I’m frustrating, I know that. I can’t even keep up with how I feel moment to moment so how could anyone else?